Responsum for PF

Patient Information Platform

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Privacy Policy

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Responsum is specifically designed to provide a free, online tool for patients, caregivers and loved ones whose lives have been impacted by chronic disease. In order to provide an individualized, customized tool, we rely on information provided by patients related to their health status and personal attributes.

In offering these services, Responsum will always respect its users’ privacy concerns. This Privacy Policy (the “Policy”) describes the type of information Responsum, Inc. (“Responsum”) collects from people who visit the site, and how that information may be used and shared. In order to explore the site beyond its landing page, visitors must create an account. If you do not create an account, the only information the site will collect from you is the non-personally identified information collected through “cookies,” as described below in the section on cookies.

This Policy is designed to ensure that you understand our practices with respect to information we collect from you throughout the site. By using the site, you agree to the terms of this Policy, which are also incorporated by reference into the Terms and Conditions of Use of the site, to which you must agree in order to use the site.

Note that Responsum may update this Policy at any time. Any changes will become effective upon the date of our posting of the revised Policy on the site. If we make a material change to the terms of the Policy, we will post a notice that it has been revised on the home page of the site. If you use the site after that date, you will be deemed to have accepted the Policy’s updated terms.

1. When do we collect your personal information?

You may provide personally identifiable information (“PII”) to us in the following ways:

  • by registering as a Member

  • by answering our intake survey

  • by sharing personal information when you post comments on our blog posts, such as your     email address or Twitter handle

  • by responding to a pop up question about your health on your personal health page

  • by agreeing to allow third party service providers to provide us information, such as, for example, a patient assistance program

  • In addition to PII, we may also collect non-personally identifiable information (“NPII”) from Users when they visit the site.

2. What personal information do we collect?

The information Responsum collects from users through the site includes “Personally Identifiable Information” (“PII”), which is information that identifies an individual personally, such as first and last name, date of birth, postal address, email address, and telephone number. Examples of PII may include, but are not limited to:

  • Demographic or biographical information, such as age, gender, ethnicity, religion, and location (city, state, country);

  • Condition/disease information, including diagnosis, symptoms (e.g., frequency, duration, severity), family history;

  • Course of treatment (e.g., medicines, surgeries, therapies, etc.), including side effects;

  • Photographs or pictures;

  • Sensor information from fitness or activity trackers;

  • Laboratory or diagnostic test results;

  • Genetic information;

  • Electronic health records;

  • Information shared via free text fields; and

  • Connections to other users of the site

Responsum may collect this type of information from you when you voluntarily provide it through the site, such as when you fill out our intake survey or if you post it in comments on the site. 
The personally identifiable information that Responsum collects from users will never be made public or shared with others without explicit authorization from the user. However, if you post PII on the public areas of the site (e.g., via chat rooms or comments), that PII is generally accessible to and may be collected and used by others and may result in unsolicited messages or other forms of contact from others. You are therefore advised to exercise caution and discretion when posting PII in such areas of the site. You are solely responsible for the information and other content you post on or through the site.

NPII we collect when you visit the site may include:

  • your IP address

  • your approximate geographic location

  • the operating system you are using

  • the Internet browser you are using

  • the Web page you requested to visit

3. How is my personal information used?

Depending on the portion of the service and site that you have subscribed to or interacted with, we may use your information in a number of ways:

  • Responsum will use the information you provide to us to personalize the news feed you receive on your Personal Health Page.

  • Responsum will use the information you provide to us to customize the content that populates the Resources Page on your Personal Health Page.

  • If you comment on the site, and your comment violates our Terms, we may use the contact information you provided in order to comment to notify you of the policy violation.

  • We may use your NPII to monitor site usage trends and improve the User experience.

  • We may disclose your PII if required to do so by process of law, or if necessary in order to investigate fraud, a violation of our Terms or in connection with any harm being caused to a third party or their rights.

  • We may use PII about you to respond to your requests, such as to answer your questions about using the site, content you may have posted, your experience using the site, and to provide you with clarifications, explanations or perhaps the benefits offered by features in the site.

  • Finally, we may use PII about you for our internal business purposes, including in particular to help us determine usage of all of our features and help us improve our product generally, and the better customize each user’s experience. We also use PII for related internal purposes, such as data analysis, audits, enhancing the site, identifying usage trends and determining the effectiveness of our messaging.

4. Who else will have access to my personal information?

Responsum may contain links to Internet sites or third party applications or widgets operated by other companies that we don’t own or control. These links might have been added by us or by a User, such as in a submitted comment. Regardless of who added a given link, Responsum cannot be responsible for the privacy practices of websites or other services operated by third parties. Once you leave the Responsum website via such a link or access a third party application or widget, you should check the applicable privacy policy of that third party to determine how they will handle any PII they collect from you.

Responsum staff may sometimes need access to a user’s PII in the course of troubleshooting problems or resolving complaints. Responsum may share certain de-identified information from Responsum users to partners, such as pharmaceutical or medical device manufacturers and academic institutions that are researching and analyzing ways to better understand patient experience and improve treatment and patient outcomes. Before delivery or exposure of this information, Responsum will remove users’ private data to eliminate the risk of any partner identifying any particular patient.

We will never share users’ PII with unaffiliated third parties for their own marketing purposes.

In the event of any reorganization, merger, sale, joint venture, assignment, transfer or other disposition of all or any portion of Responsum, any affiliate, or its assets, we may transfer any and all information that we collect from site users to the acquiring party or assignee.

Further, we may disclose PII about users to others as we believe to be appropriate in the following circumstances: (i) when required by applicable law, including laws outside your country of residence; (ii) to comply with legal process (iii) to respond to requests from public and government authorities; (iv) to enforce the terms and conditions for use of the site, including this Privacy Policy; (v) to protect and defend our rights and property; (vi) to protect the interests and safety of Responsum or others; and (vii) to permit us to pursue available remedies or limit the damages that we may sustain. We will notify you of any such disclosure as required by applicable law.

5. What about cookies?

Cookies are small bits of information that we might place on your computer. We would use cookies to identify your Internet browser, store Users’ preferences, and determine whether you have installed sufficient enabling software needed to access certain parts of the service. Data in cookies may be read to authenticate user sessions or provide features of the service.

You can program your computer to warn you each time a cookie is being sent, block third party cookies or block all cookies. However, by blocking all cookies you may not have access to certain features of the service.

This is a complement to information provided earlier. The user may at any time cancel the use of cookies on this web site by modifying the configuration of the web browser used, as follows:

6. How do I edit my personal information?

As a Responsum user, you have access to all the information we have about you and retain the ability to edit your personal profile at any time.

7. How do I delete my Membership account?

If you would like to delete your Membership account, please contact us at using the email address associated with your account.

Please let us know your username in that email, so that we may complete your request accurately.

If you signed up through a third party Responsum partner, you may need to delete your Membership account using features from that 3rd party provider.

You should be aware that it may not be technologically possible to remove each and every record of the information you have provided to us from our servers. The need to back-up our systems to protect information from inadvertent loss means that a copy of your PII may exist in a non-erasable form that may be difficult or impossible for us to locate. In addition, we have the right to delete any account at any time if required to do so by process of law, or if necessary in order to investigate fraud, a violation of our Terms or in connection with any harm being caused to a third party or their rights.

8. How secure is my personal information?

We use state-of-the-art administrative, technical, personnel and physical measures to safeguard your PII against loss, theft or unauthorized use, disclosure or modification. Our website and service is fully HIPAA compliant, meaning that Responsum meets the standards set for protecting sensitive patient data as directed by the Health Insurance Portability and Accountability Act.

Responsum will retain PII about its users for the period necessary to fulfill the purposes outlined in this Policy or our data retention policies unless a longer retention period is required by law. However, Responsum cannot guarantee the integrity or authenticity of any data that users provide about themselves.

Although nobody can completely guarantee the security of anyone’s PII, we make all legally required and commercially reasonable efforts to protect your PII from loss, misuse, or alteration by any unauthorized user. You should be aware that there is always some risk involved in transmitting information over the Internet, however.

Responsum will never collect or retain as user’s personal financial information (“PFI”), such as credit card data.

Responsum will never share a users’ PII with a third party without their express authorization.

Responsum will retain PII about its users for the period necessary to fulfill the purposes outlined in this Policy or our data retention policies unless a longer retention period is required by law. However, we cannot guarantee the integrity or authenticity of any data that users provide about themselves.

9. Contacting Us

If you have any questions or concerns related to this Privacy Policy or the information practices of this site, please send us an e-mail at

Responsum Health, Inc.
100 M Street, SE, Suite 750
Washington, DC  20003